Off Limits

The flu has hit the Willis household. Brayden tested positive for strep and flu. So, we have to stay away from the hospital for 24-48 hrs and take tamiflu. Thank goodness little miss Savannah is behaving and doing well. Her infection is improving and her vent settings are being weaned daily. Her heart rate is kind of all over the place due to infection and her potassium being low. I think I forgot to mention that I got in contact with the genetic team, but the doc specializing in PKS is out of office until may 9th. Also, her docs are keeping in touch with them as well which is pleasing to us. Jon prayed a prayer a while back asking for our situation with the docs to improve and that prayer has been answered. Everything has greatly improved and little miss looks so much better now than she did on Sunday. I hate that a mistake/complication caused her to suffer unnecessarily but she fought it like a boss. 😊 Our family is in awe as to how she's still with us today. She is a fighter that is for sure, she is not willing to give up. Nurses always tell us they like the fiesty ones...they have the will to fight and to live. And fiesty she is...has such a temper. I'm gonna miss seeing that chubby little girl the next few days, but at least I have time to catch up on some much needed rest.