Saturday, May 7, 2016

Praying that the good days are here to stay

Good news!


Savannah will not require heart surgery anytime soon, if ever. Her narrowing in her aorta is too small to be of worry right now so the cardiologist will just continue to follow her. She said the narrowing is something that could better or worsen over time.


The fluid pockets in her abdomen haven't grown any bigger and aren't believed to be infection.


Her white blood cell count is 23000 which is awesome so they changed her antibiotics and took her off some of the "big gun" ones they call them. She can't stay on those for too long because it will cause resistance to some of the more simple antibiotics.


Her feeds were upped to 2 mL with her only having one spit since starting feeds. She is at a high risk for aspiration pneumonia, so the less she spits the better.


The genetic doc is back from vacation on Monday, so praying we get an appt with him soon.


Her blood gases are way beyond extubation level so we feel a little more confident she will do well without her breathing tube. Just over the past few days I've noticed her oxygen doesn't drop as often and if it does she just needs to be suctioned. She slobbers a lot!


Her docs are awesome right now! Very attentive to her uniqueness! She has angels of nurses looking out for her...some have grown so attached to her and it's assuring to know others are willing to fight for her just as much as we are!


So, we are headed in the right direction! I love my Jesus and I love that little girl more than she will ever know! 💕

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