Tuesday, May 3, 2016

PKS

Pallister Killian Mosaic Syndrome...i HATE you...with every ounce of my being. I HATE you for causing my child to have a difficult airway causing her to be a difficult intubation...i HATE you for causing my child to have such bad reflux/aspiration that she required a G tube to be fed through...i HATE you for causing her organs to not be strong enough to hold stitches in place after surgery...i HATE you for her stomach having a slower emptying time...i HATE you for causing her to have a second surgery on her stomach to fix the hole and not allowing her to keep the Nissen stitching to prevent her from refluxing...i HATE you for not allowing her to have her formula since I don't remember when...i HATE you for her intestines being to small for her NJ tube which caused severe irritation to her stomach...i HATE you for the way her bottom was formed requiring dilation to use bathroom properly...i HATE you for her cleft palate...i HATE you for her veins being abnormal requiring her yet another surgery to put a central line in...i HATE you for her heart issue...I HATE you for not allowing me to hold my baby for over 2 weeks now...i HATE you for the discomfort I know she's feeling...i HATE you for the infection she is trying to fight...i HATE you for the fact that they had to reopen her incision to check for infection...




ok...i feel better

1 comment:

  1. Love you so much! Wish I could make everything better for Savannah. Praying for Savannah and you!

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