6 Months

Savannah is up to 14 lbs, 15 oz. Her 4 month shots were a little rougher on her...slight fever and very lethargic for a while. She is growing great on her growth curve. She is also getting her first tooth, but not showing much discomfort with it. And she has found her face...keeps taking her hand to her mouth or eyes.


Updates on Doc Appts:
-Neuro doesn't feel like what we are describing is seizure activity, but with her brain formation and syndrome setting her at a greater risk for seizures, she will have a 24 hr EEG coming up. 
-Her pediatric surgeon discussed her next surgery to fix her imperforate anus/fistula. She would like to get it done before she's a year old. A new fact we discovered is that if there were to be complications or to initially go about the surgery the safer way, she would end up with a temporary colostomy. 😞
We are, however, getting a second opinion from the very awesome surgeon that did Savannah's emergency surgery and central line...for various reasons. We see her Oct. 7th.
-We go to UK clinic for her hearing in Oct. to hopefully get the definitive answer on that.
-Savannah started physical therapy this past week...they will be coming in twice a month initially. She loves her therapist! Speech comes in as well once a month to work on oral motor exercises to hopefully prepare her for bottles later down the road.

making progress

Savannah rolled onto her belly today!




-Neonatal docs tried to up her feeds to 36 mL per hour every 20 hrs so she could have a break...in order to do her therapy on a not so full stomach or should we say intestines. Well, missy wasn't having it so docs had to go back to her regular 30 mL per hour every 24 hrs. She doesn't take change very well!
-An accurate hearing test hasn't been completed with her keeping fluid on her ears so we are being sent to specialists at UK in October.
-She will have physical therapy twice a month and speech once a month with First Steps coming soon.
-She battled her first cold like a champ! Big brother brought home a cold which lasted a couple days for him & Alayna, but lasted 2 wks for Savannah.

5 Months

Miss Savannah weighs 14 lbs. and can roll occasionally, has decent head control tolerating tummy time for no more than 5 minutes. Loves to be talked to and held...coos and smiles at momma.


Went to her neonatal follow up doc today...her weight is on track, but she's a wee bit short. First steps will probably he focusing on physical therapy most with occasional visits from speech, hearing and visual therapists. She is a little behind on her visual tracking and her main concern now is opening up her hands more often while on her belly to push up to crawl and pull up to stand later down the road whenever she decides to. They evaluate her according to her adjusted age (3 months). We also learned today that babies with low tone tend to sleep more often...which explains her laziness. 😊

Busy Girl

Savannah has been busy with her many appointments. Here's a quick update on what all is going on with this girl:


-Surgeon that placed her G tube wants to wait on fixing her little bottom...wants her to thankfully just have a chance to grow and be a little baby for once...said she's been through enough right now.


-Heart doc came right in talking surgery on her narrowed aorta so I stopped him in his tracks...its the same so we are leaving it alone for now. We also learned that her heart has some mild thickening.


-She failed her hearing test again...only hears high pitch noises. Retesting later this month before saying she definitely needs hearing aids.


-In the process of finding her a pediatrician that is the right fit for her.


-Made a quick trip to Louisville the other day thinking her balloon that holds her feeding tube in was leaking...well it wasn't...but she got a brand new tube put in which she would have been due for next month anyway. Jon and I got to watch it be put in.


-More appointments to come in the near future...will keep ya posted...she's doing so well at home!

4 Months

Savannah is enjoying being home. She sleeps a lot and sort of has her days and nights mixed up. I've been fortunate to be home with her this week, but next week she enters daddy/granny daycare. Brayden and Alayna are wonderful with her. We went for her check up at the pediatrician yesterday. At four months she weighs a whopping 12 lbs. 14 oz. and is 21.5" long. Her weight is good, but a little on the short side. Her doc was wonderful...did all she could to get info from all resources and offered to check on us over the weekend. For now the plan is to make no changes, but she did want to follow up on her suspected seizures. Her EEGs in the hospital never showed any, but I believe I've seen her have some. We have quite a few appointments ahead of us. It's nice to feel somewhat normal again...rocking my baby to sleep in our home, giving her a bath in her tub and putting her in the car, not having an hour and a half drive separating me from my little girl, etc. It's the little things in life that matter the most. Happy four months sweet girl! So glad we get to spend it at home!

Home

We are home and what a blessing it is!

Passing with Flying Colors

Little Miss passed her car seat test and did well with her 2 month vaccines...even closer to home now!