Savannah has been busy with her many appointments. Here's a quick update on what all is going on with this girl:
-Surgeon that placed her G tube wants to wait on fixing her little bottom...wants her to thankfully just have a chance to grow and be a little baby for once...said she's been through enough right now.
-Heart doc came right in talking surgery on her narrowed aorta so I stopped him in his tracks...its the same so we are leaving it alone for now. We also learned that her heart has some mild thickening.
-She failed her hearing test again...only hears high pitch noises. Retesting later this month before saying she definitely needs hearing aids.
-In the process of finding her a pediatrician that is the right fit for her.
-Made a quick trip to Louisville the other day thinking her balloon that holds her feeding tube in was leaking...well it wasn't...but she got a brand new tube put in which she would have been due for next month anyway. Jon and I got to watch it be put in.
-More appointments to come in the near future...will keep ya posted...she's doing so well at home!
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