october

This month has been crazy...very busy. Little miss is taking it well tho...on days when I think she will be exhausted from the previous day's doc appt she surprises me by being very active. We have seen an ENT doc in Lexington who is recommending hearing aids. However, Savannah must have a sedated hearing test in the near future to get the most accurate readings so the audiologist will know where to set the hearing aids.
  We also finally met with the plastic surgeon regarding her cleft palate. To sum it up, he isn't going to repair it unless she develops speech or takes a bottle. He doesn't want to put her through a major surgery if it isn't going to benefit her.
  We met with our new surgeon regarding her anoplasty surgery. This is the surgeon that, along with Jesus, saved Savannah's life post Nissen explosion. We wanted a second opinion from her since I've not always agreed with her prior surgeon on everything. This new surgeon is more realistic when it comes to PKS and what it entails for Savannah's life. We have all come to the conclusion that she will have a colostomy and if and when we decide to go for it she will have the anoplasty to fix her imperforate anus. It was the same story as with plastics...why put her through a very major surgery if it will not benefit her such as for potty training. Savannah already has difficulty healing so we figured her best option was the colostomy because it's a much easier surgery and recovery. I'm still not sure as to when this surgery will take place...the surgeon doesn't seem to be in any hurry due to the fact Savannah isn't having issues with her stools. So, we are relieved in a sense from when we left Kosairs to bring her home. We knew leaving that day she still had a very difficult road ahead of her, but for now that road is becoming easier. There are still a couple of appointments to go this month...so I will update when I'm not too busy. 😊


on a side note...please keep in prayer Savannah's PKS sister, Ava. She lives in New Zealand and is currently in the hospital fighting for her life with pneumonia...but if I've learned anything about these kiddos they are the toughest and put up the best fight!