Miss Savannah weighs 14 lbs. and can roll occasionally, has decent head control tolerating tummy time for no more than 5 minutes. Loves to be talked to and held...coos and smiles at momma.
Went to her neonatal follow up doc today...her weight is on track, but she's a wee bit short. First steps will probably he focusing on physical therapy most with occasional visits from speech, hearing and visual therapists. She is a little behind on her visual tracking and her main concern now is opening up her hands more often while on her belly to push up to crawl and pull up to stand later down the road whenever she decides to. They evaluate her according to her adjusted age (3 months). We also learned today that babies with low tone tend to sleep more often...which explains her laziness. 😊
Monday, August 22, 2016
Sunday, August 7, 2016
Busy Girl
Savannah has been busy with her many appointments. Here's a quick update on what all is going on with this girl:
-Surgeon that placed her G tube wants to wait on fixing her little bottom...wants her to thankfully just have a chance to grow and be a little baby for once...said she's been through enough right now.
-Heart doc came right in talking surgery on her narrowed aorta so I stopped him in his tracks...its the same so we are leaving it alone for now. We also learned that her heart has some mild thickening.
-She failed her hearing test again...only hears high pitch noises. Retesting later this month before saying she definitely needs hearing aids.
-In the process of finding her a pediatrician that is the right fit for her.
-Made a quick trip to Louisville the other day thinking her balloon that holds her feeding tube in was leaking...well it wasn't...but she got a brand new tube put in which she would have been due for next month anyway. Jon and I got to watch it be put in.
-More appointments to come in the near future...will keep ya posted...she's doing so well at home!
-Surgeon that placed her G tube wants to wait on fixing her little bottom...wants her to thankfully just have a chance to grow and be a little baby for once...said she's been through enough right now.
-Heart doc came right in talking surgery on her narrowed aorta so I stopped him in his tracks...its the same so we are leaving it alone for now. We also learned that her heart has some mild thickening.
-She failed her hearing test again...only hears high pitch noises. Retesting later this month before saying she definitely needs hearing aids.
-In the process of finding her a pediatrician that is the right fit for her.
-Made a quick trip to Louisville the other day thinking her balloon that holds her feeding tube in was leaking...well it wasn't...but she got a brand new tube put in which she would have been due for next month anyway. Jon and I got to watch it be put in.
-More appointments to come in the near future...will keep ya posted...she's doing so well at home!
Saturday, July 9, 2016
4 Months
Savannah is enjoying being home. She sleeps a lot and sort of has her days and nights mixed up. I've been fortunate to be home with her this week, but next week she enters daddy/granny daycare. Brayden and Alayna are wonderful with her. We went for her check up at the pediatrician yesterday. At four months she weighs a whopping 12 lbs. 14 oz. and is 21.5" long. Her weight is good, but a little on the short side. Her doc was wonderful...did all she could to get info from all resources and offered to check on us over the weekend. For now the plan is to make no changes, but she did want to follow up on her suspected seizures. Her EEGs in the hospital never showed any, but I believe I've seen her have some. We have quite a few appointments ahead of us. It's nice to feel somewhat normal again...rocking my baby to sleep in our home, giving her a bath in her tub and putting her in the car, not having an hour and a half drive separating me from my little girl, etc. It's the little things in life that matter the most. Happy four months sweet girl! So glad we get to spend it at home!
Wednesday, July 6, 2016
Saturday, July 2, 2016
Passing with Flying Colors
Little Miss passed her car seat test and did well with her 2 month vaccines...even closer to home now!
Thursday, June 30, 2016
Best Day Ever!
Savannah is coming home! One day next week we will be a family of 5 under one roof! Thank u Lord!
Wednesday, June 29, 2016
Pinch me...i think i'm dreaming!
I could shout to the rooftops with excitement and thanks to God! Savannah's GJ feeding tube came in today and they took her right down to fluoro to put it in...she is doing wonderful with it. Setting the feeds up with it was a breeze. Tomorrow I plan on talking to docs regarding discharge plans to see what they have in mind. I know she's had a few breathing issues here lately, but mostly due to secretions and probably discomfort from the NJ feeding tube so I'm curious to see what they say. I do know I will have to receive a crash course in infant CPR and have apnea monitor training before she comes home. But for now all is well and we are one step closer to home! Thank you Jesus!!! Savannah is pretty stoked...she was dancing away tonight shaking her legs and arms every which way! Her physical therapist would be proud...she was doing lots of her bicycling exercise! 😃
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